Project Nightingale FAQs
What do I need to complete?
It would be great if you completed the daily "feelings" (from the homepage) and daily questionnaire (from your message inbox, under the Profile tab).
How often do I use the app?
If you complete these once a day, at the same sort of time each day, that will ensure we have consistent results. You can, of course, complete more than once a day if you feel it appropriate. If you miss a day, or even a few weeks or months, do not worry! Any data that you can provide will be useful.
Do I have to use a fitness device to take part?
In short, no. The fitness information will be incredibly useful but if you don’t own a device or app, please join anyway. The information you can provide on the feelings and daily questionnaire will be extremely valuable as it is.
How to pair a device?
We will provide details for how to pair a device soon - unfortunately this is not working at present. We will let you know via the My Arthritis message inbox once this feature becomes available!
Where can I see the data I have entered?
The data you enter will be captured and can be seen from the ‘Stats’ tab on the home page.
Who else will be able to see my data?
Individual-level data will only be accessible by yourself and your clinician. However, if you are interested in your data being used for research to help the wider axial spondyloarthritis community, please ask your clinician about consenting to the Bath Spondyloarthritis Biobank. Your data would be anonymised and kept on safe, secure servers. This would allow researchers to analyse your anonymised data to gain a better understanding of the condition and to hopefully help others. This data would not include your name, email address or any other information that can identify you. All your data is kept protected and secure, and you can request for it to be deleted at any time by emailing email@example.com. If you are interested in participating in research, or have any questions or concerns, please email our research assistant Rosie who would be more than happy to discuss this with you (firstname.lastname@example.org).
Is there some where I can add any comments I have about my day?
If there is an event you feel worthy of capturing as you feel it may have impacted your results, please capture it in the Notes section, accessible from the Profile tab. This might include an accident you had, a day missed from work due to axSpA symptoms, or an event you attended. For those of you tracking your menstrual cycle you may like to include where in your cycle you are here.
Can I set up a reminder?
The app does send one automatic reminder to your message inbox daily, but of course you can set up individual reminders on your mobile device if that helps.
Does the optional "screen time" question relate to mobile phone/computer/tablet screen time only or does it include total screen time including watching TV?
This refers to total screen time - including watching TV.
Any other questions?
Please feel free to get in contact with our research assistant Rosie, who would be more than happy to talk through any queries you may have.
Just email email@example.com.